Kaylinn is doing much better today so they "unplugged" her from all the machines this morning and let her go for a walk around the hospital and then mid morning I was able to take her to the play room - which she absolutely LOVED! And after we got back to the PICU they brought Tucker to see her again! So it was a good day! She loved Tucker, until he licked her foot and that scared her half to death! She had to have more lab work done and we were so thankful that the lab technician was able to get the blood through her IV - he wasnt' sure he'd be able to but he was and we were all greatly relieved after the whole needle experience with her yesterday (lets's just say, the entire 3rd floor knows Kaylinn hates needles!). Then they discharged her and she goes back tomorrow for follow-up. We'll get her lab results then as well. Everything with the MRI was normal so that is good. Both doses of the reflux medicine they gave her came back up again so they are trying a different medicine now which she will start tonight. We are hoping we can plan on heading back to Pohnpei early next week. We are frustrated and disappointed that so far they have no definite answers for her problem but they have run out of tests to do.
Thursday, September 29, 2011
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