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Kasalehlia! We are the Kihleng family and we are missionaries to the island of Pohnpei in the Federated States of Micronesia. This blog is to keep friends and family (and whoever else is interested!) updated on what we are doing in the islands. So check back here often to see updates on our ministry as well as our ever growing family!

Tuesday, September 27, 2011

Update on Kaylinn

Ok, I'm sorry it's taken me so long to post an update but things have been crazy today.  We are in much need of prayer right now.  We took Kaylinn to the hospital for her bronchoscopy at 5:30 this morning.  She was taken back and put on the anesthesia at 7:30 and by 8:00 AM they came to tell us all went well and they had found the problem!  Her tonsils are very swollen, so much so that they could hardly get the scope down.  Plus, she has some excess tissue in the back of her mouth.  They said the two combined is what is causing the problem.  This was an answer to prayer; however, it was not something the surgeon could fix but we would have to be referred to an ENT.  The surgeon contacted the pediatric ENT (the only one here) who told us she could not squeeze Kaylinn in for another two weeks!  The surgeon assured us he'd keep working on it and see if they could get us in sooner.  Meanwhile, we went back to wait for Kaylinn to come out of recovery, which we were told should only be about 15 minutes.  An hour later, the anesthesiologist came out to talk with us and said there was a little problem - they couldn't get Kaylinn to wake up!  They said this wasn't normal and he wasn't sure what was going on.  He reassured us she was "fine" though.  Another hour went by and they came to inform us her eyes were open but she was like she was paralyzed, which didn't make sense considering the low dosage of meds they gave her.  They told us they were admitting her into ICU.  Another hour went by and we were told she was finally breathing on her own, just with an oxygen mask but was off the ventilators but they were afraid there was something more serious causing all this.  Finally, I was allowed to see her.  She was pretty loopy though.  It's now 8:00 PM and we are in the pediatric ICU.  I'm not sure how long we will be here.  The good news is, they are FINALLY doing something.  The doctors came in and went over her entire history beginning till now and all said the same thing - they've never come across a case like this!  Leave it to our family to have to make medical history!  She will be seeing a pediatric neurologist and a pediatric ENT tomorrow.  She will be having an MRI tomorrow which will have to be under anesthesia again which means we'll probably be here another night.  They are now starting to think she has two separate problems.  The swollen tonsils would cause the sleep apnea but not the cyanosis while she is awake.  They are still leaning toward the theory of seizures being the cause.  Hopefully the MRI will give us the answers we need.  We were looking forward to seeing our other children by the end of this week - now things appear to be changing again.  Please pray for Kaylinn through this - she hates being hooked to all these monitors.  And pray for our children back home - it's hard on them and us to be separated!  We need to go home soon, but we also need Kaylinn to get well!  Thank you for your prayers.  I will update as I can.  

6 comments:

Joyful Grandma said...

Praying for all of you during this time.

Chris, Carole, and Clan said...

I learned about you all from Rachel Winkler. We're praying for you and your precious little girl!

olivia cresswell said...

We are praying much for you all! Know that we love you! - Olivia

Lynn said...

Praying for all of you! Our Great Physician is faithful!!!

Vera said...

Praying for you all!

Weaver Fam. said...

Bro. Stevens was just at our church a couple weeks ago and filled us in about your situation. My husband and I met you and your wife and first baby our first year at ABC. Anyways, our church is praying for you and so are we.